News articles
"It's only now that I have seen the impact macular disease has on people"
A retired ophthalmic nurse said it wasn’t until she began to volunteer with her local support group that she realised the true impact of macular disease and the impact it has on many people’s lives.
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Charles Bonnet Syndrome Awareness Day 2024: Your experiences
Posted: Saturday 16 November 2024
Imagine spotting angels perched in trees, an infestation of flies, or even a familiar face from your past appearing in your living room.
"I see the floating heads of toothless, grinning medieval men"
Posted: Saturday 16 November 2024
Visions of medieval figures with open mouths and toothless grins have been some of the vivid images that Sheila started to see following her diagnosis of age-related macular degeneration (AMD).
“I hope Archie will never have to worry about losing his sight”
Posted: Monday 11 November 2024
When Sian was first diagnosed with Best disease, a rare genetic eye condition, she was just a child. She barely remembers the details, only that she got a day off school and visited the Tower of London. Decades later, the condition she had almost forgotten about resurfaced - this time, affecting her young son, Archie.
First UK hearing and sight loss survey launched
Posted: Thursday 7 November 2024
The first survey in the UK to collect data on vision and hearing loss has been launched. The UK National Eye Health and Hearing Study, aims to record data to inform the NHS and policymakers and is a collaboration between sensory loss charities, Anglia Ruskin University, eye and hearing care professionals and the public sector.
