Friends Lynne, left, and Karen smile to the camera while holding cups of tea.

“We can support each other and that has been quite marvellous”

Posted: Wednesday 17 July 2024

Two women who joined a global online support group for people with an extremely rare form of macular disease have formed a friendship after discovering they lived just a few miles apart.

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Fitness leader Rosey with her arm aloft wearing a Macular Society fundraising t-shirt. Macular Week posters are in the background

Vision-themed fitness classes support Macular Week

Posted: Thursday 4 July 2024

Rosey, a 67-year-old fitness instructor, turned her exercise classes into a tribute to those living with macular disease as she set the routines to vision-themed music and asked everyone to wear yellow for Macular Week.

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Peter and wife sue posing to camera. Peter standing smiling wearing a light blue shirt, with his arms around wife sue who is sat down wearing yellow spotted dress

“Talking to people who knew what macular was, I knew I wasn’t alone"

Posted: Tuesday 2 July 2024

When Peter was told he had macular degeneration, he found himself overwhelmed with uncertainty and fear. The rapid deterioration of his sight was far worse than he had imagined, and the lack of information and support he received left him feeling ‘abandoned’.

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Female consultant, discussing results with male patient with computer images of results.

Advice for eye injections

Posted: Tuesday 2 July 2024

Being told you need an injection in your eye can come as a shock to many people and leave you feeling anxious and worried. Brian, who has undergone 37 injections in one eye, talks through his experience, offering reassurance.

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Researcher in laboratory with syringe

Radiation treatment could reduce frequency of injections

Posted: Tuesday 2 July 2024

A new study led by researchers from King's College London and King's College Hospital NHS Foundation Trust has shown that radiation could significantly reduce the number of injections needed to treat wet age-related macular degeneration (AMD).

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Ruth Rhydderch

Understanding the role of an ECLO

Posted: Monday 1 July 2024

Navigating a diagnosis of macular disease can be overwhelming, but Ruth Rhydderch, an eye clinic liaison officer (ECLO) at the University Hospital of Wales, explains how her role can make a difference.

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Nancy looking into the camera with her hands held near her face

"I know my eyesight will change, so I want to live in the here and now"

Posted: Monday 24 June 2024

Nancy assumed her vision changes were just part of getting older. When she noticed blank spots and disappearing words while reading, she thought she needed a new prescription.

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Dr Ratnayaka portrait

Stopping the build-up of toxic waste in dry AMD

Posted: Monday 24 June 2024

In dry age-related macular degeneration (AMD), toxic waste builds up in the retina because cells can't clear it. Dr. Arjuna Ratnayaka is researching ways to activate the cells’ waste removal system to reduce this buildup and protect vision.

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Andrew Dick in lab looking through microscope

Boosting key protein in eye cells shows promise in preventing AMD

Posted: Friday 7 June 2024

Increasing the levels of a key protein in eye cells may help protect against age-related macular degeneration (AMD), according to new research led by the University of Bristol.

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Polling station sign hanging on a black railing with a brick building in the background

Voting with a visual impairment

Posted: Thursday 6 June 2024

With a general election coming up, Colin Daniels, our Working Age and Young People’s Service Manager, tells you what you need to know to make sure you can vote independently on Thursday 4 July.

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James Neffendorf headshot

How is the landscape for treatments for macular disease changing?

Posted: Wednesday 5 June 2024

From new drugs to treat wet age-related macular degeneration (AMD) to the first-ever drug being approved to treat dry AMD in the US, the treatment landscape for people with macular disease is changing rapidly.

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Medical research working together on a computer

Macular disease top priority in UK eye research

Posted: Tuesday 4 June 2024

Macular disease has been identified as a top priority for eye care research in the UK over the next five years, according to a new study published in the journal Eye.

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