Latest news
'Talking about it is an opportunity to help people understand more about sight loss'
Posted: Thursday 29 February 2024
Leah's journey with Best disease started when she was growing up with her brother Finn, who has the condition. But, even though she knew what it was, her own eyesight was not affected.
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Patients reveal communication gaps in diagnosis
Posted: Monday 5 February 2024
Patients have highlighted noticeable gaps in communication when they are first diagnosed with macular disease, or if they are considered at risk of developing the condition.
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'The more that is known about Charles Bonnet syndrome, the better'
Posted: Thursday 1 February 2024
Researchers at Royal Holloway University looking into the effectiveness of different techniques to help manage visual hallucinations are calling for more participants to take part in the first study of its kind.
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Another new drug offers hope for Stargardt patients
Posted: Monday 29 January 2024
Another drug to potentially treat Stargardt has shown positive results in slowing down the progression of the disease in a recent trial.
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Dedicated group for those supporting people with macular disease launches
Posted: Thursday 25 January 2024
A new dedicated support group for caregivers and those supporting people living with macular disease will launch this spring, recognising their often-overlooked needs.
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'Do the things that make you feel worthwhile'
Posted: Wednesday 24 January 2024
The loneliness and isolation associated with sight loss can be detrimental to our mental health, but volunteer Carol is on a mission to emotionally lift and encourage others.
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Michael Owen prays for a cure for son's Stargardt
Posted: Tuesday 23 January 2024
Michael Owen has brought Stargardt into the spotlight again as he talks about his son's diagnosis.
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‘I feel so incredibly lucky to have had the opportunity to work for such a wonderful organisation’
Posted: Friday 12 January 2024
After nearly a decade of dedicated service as chief executive of leading sight loss charity the Macular Society, Cathy Yelf has announced her decision to retire in 2024.
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Online support for early onset macular degeneration
Posted: Monday 8 January 2024
A new support group for people with early onset macular degeneration – a condition many often confuse with early age-related macular degeneration (AMD) – will launch next month.
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Podcast mini series shines light on extra financial support
Posted: Tuesday 2 January 2024
Living with sight loss may entitle you to extra financial support to help with day-to-day costs, but do you know what you can claim?
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'I went to help make tea but I stayed for the support'
Posted: Thursday 21 December 2023
For more than a decade Valda volunteered with her local support group, despite her initial doubts of being around others with sight loss.
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‘We’re hoping our research can lead to potential treatments’
Posted: Wednesday 20 December 2023
A groundbreaking research project is underway, focusing on screening a library of already licensed drugs to potentially treat Stargardt disease.
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