Latest news
“We can support each other and that has been quite marvellous”
Posted: Wednesday 17 July 2024
Two women who joined a global online support group for people with an extremely rare form of macular disease have formed a friendship after discovering they lived just a few miles apart.
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"I want to help create awareness of macular disease first and foremost"
Posted: Thursday 4 July 2024
Rosey, a 67-year-old fitness instructor, turned her exercise classes into a tribute to those living with macular disease as she set the routines to vision-themed music and asked everyone to wear yellow for Macular Week.
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“Talking to people who knew what macular was, I knew I wasn’t alone"
Posted: Tuesday 2 July 2024
When Peter was told he had macular degeneration, he found himself overwhelmed with uncertainty and fear. The rapid deterioration of his sight was far worse than he had imagined, and the lack of information and support he received left him feeling ‘abandoned’.
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"I know my eyesight will change, so I want to live in the here and now"
Posted: Monday 24 June 2024
Nancy assumed her vision changes were just part of getting older. When she noticed blank spots and disappearing words while reading, she thought she needed a new prescription.
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"Volunteering is very fulfilling and it keeps your brain and body active”
Posted: Monday 3 June 2024
When Tricia was diagnosed with macular disease, she already had a support system in place, thanks to her role as a volunteer with her local support group.
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'It's very important that I make the best of what I can see and do now'
Posted: Thursday 25 April 2024
John has been creative for as long as he can remember, and is determined to keep doing what he loves, while adjusting to life with sight loss.
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‘I didn’t appreciate the longer-term emotional impact of this disease’
Posted: Wednesday 20 March 2024
Jill, a university researcher from County Durham, described how the Macular Society’s Counselling Service gave her the “time and breathing space” to adapt after a diagnosis of an extremely rare form of macular disease.
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'Talking about it is an opportunity to help people understand more about sight loss'
Posted: Thursday 29 February 2024
Leah's journey with Best disease started when she was growing up with her brother Finn, who has the condition. But, even though she knew what it was, her own eyesight was not affected.
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'The more that is known about Charles Bonnet syndrome, the better'
Posted: Thursday 1 February 2024
Researchers at Royal Holloway University looking into the effectiveness of different techniques to help manage visual hallucinations are calling for more participants to take part in the first study of its kind.
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'Do the things that make you feel worthwhile'
Posted: Wednesday 24 January 2024
The loneliness and isolation associated with sight loss can be detrimental to our mental health, but volunteer Carol is on a mission to emotionally lift and encourage others.
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'I went to help make tea but I stayed for the support'
Posted: Thursday 21 December 2023
For more than a decade Valda volunteered with her local support group, despite her initial doubts of being around others with sight loss.
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"I didn't know if my hallucinations were a manifestation of my grief"
Posted: Thursday 16 November 2023
Seeing frightening faces in her own home was the reality for Penny, who was trying to come to terms with her sight loss in the aftermath of losing her husband.
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