Latest news
Charles Bonnet Syndrome Awareness Day 2024: Your experiences
Posted: Saturday 16 November 2024
Imagine spotting angels perched in trees, an infestation of flies, or even a familiar face from your past appearing in your living room.
Find out more
"I see the floating heads of toothless, grinning medieval men"
Posted: Saturday 16 November 2024
Visions of medieval figures with open mouths and toothless grins have been some of the vivid images that Sheila started to see following her diagnosis of age-related macular degeneration (AMD).
Find out more
“I hope Archie will never have to worry about losing his sight”
Posted: Monday 11 November 2024
When Sian was first diagnosed with Best disease, a rare genetic eye condition, she was just a child. She barely remembers the details, only that she got a day off school and visited the Tower of London. Decades later, the condition she had almost forgotten about resurfaced - this time, affecting her young son, Archie.
Find out more
“Don’t let the diagnosis rule your life."
Posted: Thursday 17 October 2024
A yoga instructor who has been diagnosed with Stargardt disease has shared how the practice has helped her cope with the condition after she was left feeing “completely alone”.
Find out more
“Contacting the Macular Society was the best thing I ever did”
Posted: Friday 27 September 2024
Being diagnosed with wet age-related macular degeneration (AMD) left Libby feeling “trapped” and scared about her future. But, reaching out for support not only eased her fears, it also transformed her outlook on life with a visual impairment.
Find out more
"I can now look forward to the future with a degree of hope and confidence"
Posted: Wednesday 4 September 2024
In the aftermath of his macular diagnosis, Simon was left feeling fearful and full of anxiety. But a year after receiving the devastating news that he had central retinal vein occlusion (CRVO), the 63-year-old tells us how he has managed to come to terms with his condition.
Find out more
“The most thrilling thing I have ever done”
Posted: Wednesday 28 August 2024
Turning 71 became an unforgettable milestone for retired teacher Janet as she plummeted from 12,000 feet, all to raise awareness and funds for macular disease.
Find out more
Ex BBC journalist with AMD launches podcast
Posted: Monday 29 July 2024
A new podcast has been launched by Macular Society member and former BBC journalist Angela Young, who was diagnosed with macular disease at 56.
Find out more
"Without the Macular Society, I don’t know what we would’ve done"
Posted: Wednesday 24 July 2024
When Sue’s husband Peter was diagnosed with dry age-related macular degeneration (AMD), it wasn’t just his life that changed – it was hers too.
Find out more
“We can support each other and that has been quite marvellous”
Posted: Wednesday 17 July 2024
Two women who joined a global online support group for people with an extremely rare form of macular disease have formed a friendship after discovering they lived just a few miles apart.
Find out more
"I want to help create awareness of macular disease first and foremost"
Posted: Thursday 4 July 2024
Rosey, a 67-year-old fitness instructor, turned her exercise classes into a tribute to those living with macular disease as she set the routines to vision-themed music and asked everyone to wear yellow for Macular Week.
Find out more
“Talking to people who knew what macular was, I knew I wasn’t alone"
Posted: Tuesday 2 July 2024
When Peter was told he had macular degeneration, he found himself overwhelmed with uncertainty and fear. The rapid deterioration of his sight was far worse than he had imagined, and the lack of information and support he received left him feeling ‘abandoned’.
Find out more
Get the latest news and advice from the Macular Society
To hear about life-changing research, treatments and tips for living with sight loss, subscribe to our monthly enewsletter today. Together we can Beat Macular Disease.
Sign up to our free email newsletter
