Latest news
Friends take on epic mountain challenge to beat macular disease
Posted: Tuesday 1 April 2025
From Yorkshire to Tanzania, two friends who spend their working lives treating people with macular disease are taking on a series of epic mountain climbs in 2025, raising funds to find a cure.
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“I used to cry in the shower – there was so much anger”
Posted: Thursday 13 March 2025
Counselling has been a “lifechanging” experience for Trevor, who hit his lowest point when macular disease began to impact both of his eyes.
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“I'm still really scared of losing what sight I have left”
Posted: Friday 28 February 2025
Kate’s first experience of her rare macular condition happened 16 years ago, when she suffered a bleed in her right eye. It left her with peripheral vision only, though a timely injection halted any further sight loss.
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“The Christmas appeal inspired me to carry on fundraising”
Posted: Wednesday 26 February 2025
After playing a key role in the Macular Society’s Christmas appeal in 2024, ten-year-old Archie is stepping up his fundraising efforts as he plans a new challenge to raise vital funds for research.
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“I wanted to know what I could do to try and help myself”
Posted: Monday 3 February 2025
Claire found herself “alone and lost” as she tried to come to terms with her Stargardt diagnosis, not knowing anybody else with the rare form of sight loss.
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Finding joy after a diagnosis
Posted: Friday 31 January 2025
Losing their sight changed Dawn and Chris’ lives, but it didn’t stop them from finding enjoyment in the every day. In the latest My Macular and Me podcast, they share how new hobbies, support from others, and a positive mindset helped them find joy after their diagnoses.
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"Without speaking a word, my cane tells my story”
Posted: Friday 31 January 2025
For Rita, a simple white stick helped her overcome her embarrassment of losing her sight and helped her communicate her sight loss to others.
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"Volunteering makes me feel worthwhile, I just love helping other people"
Posted: Wednesday 8 January 2025
In 2025, Jenny will have spent 16 years helping out at her local support group for people with macular disease. While she doesn’t have sight loss herself, she joined to follow in the footsteps of her late husband Alan who was a group volunteer.
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“Counselling helped me express all the guilt”
Posted: Tuesday 7 January 2025
For two decades Jane has been dedicated to supporting her husband Ed since his diagnosis with macular disease. While she has always been firmly by his side, Jane admitted she has often felt a great sense of guilt – a feeling which resonates with many friends, family members or carers of people living with sight loss.
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Architecture graduate with Stargardt wants to make buildings more inclusive
Posted: Monday 2 December 2024
A recent architecture graduate who is losing her sight to Stargardt disease, says the experience has motivated her to design everyday spaces that are accessible to everyone.
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“Without counselling, I would have been left in the doldrums - I wasn't me anymore”
Posted: Thursday 28 November 2024
From nursery teaching to supporting people with dementia, Caroline had always associated herself as an outgoing and extraverted person - until her sight began to deteriorate.
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"My Mauna Kea challenge was nothing compared to living with sight loss"
Posted: Tuesday 26 November 2024
An avid cyclist has completed a mammoth challenge of cycling the height of the world’s tallest mountain, in memory of his late wife who spent decades living with a rare macular condition.
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