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Architecture graduate with Stargardt wants to make buildings more inclusive
Latest news, posted 2 December 2024
A recent architecture graduate who is losing her sight to Stargardt disease, says the experience has motivated her to design everyday spaces that are accessible to everyone.
NICE recommends new treatment for wet AMD
Latest news, posted 5 November 2024
A new treatment option for patients with wet age-related macular degeneration (AMD) is set to become available on the NHS in England.
First UK hearing and sight loss survey launched
Latest news, posted 7 November 2024
The first survey in the UK to collect data on vision and hearing loss has been launched. The UK National Eye Health and Hearing Study, aims to record data to inform the NHS and policymakers and is a collaboration between sensory loss charities, Anglia Ruskin University, eye and hearing care professionals and the public sector.
"I see the floating heads of toothless, grinning medieval men"
Latest news, posted 16 November 2024
Visions of medieval figures with open mouths and toothless grins have been some of the vivid images that Sheila started to see following her diagnosis of age-related macular degeneration (AMD).
Charles Bonnet Syndrome Awareness Day 2024: Your experiences
Latest news, posted 16 November 2024
Imagine spotting angels perched in trees, an infestation of flies, or even a familiar face from your past appearing in your living room.
"My Mauna Kea challenge was nothing compared to living with sight loss"
Latest news, posted 26 November 2024
An avid cyclist has completed a mammoth challenge of cycling the height of the world’s tallest mountain, in memory of his late wife who spent decades living with a rare macular condition.
First-of-a-kind study shines light on DMO treatment among diverse backgrounds
Latest news, posted 29 November 2024
For the first time, people from underrepresented ethnic and racial backgrounds were the focus of a clinical trial which reported improved vision after receiving treatment for diabetic macular oedema (DMO).
Daily tablet shows promise as first treatment for Stargardt disease
Latest news, posted 2 December 2024
A new drug for Stargardt disease, called gildeuretinol (ALK-001), has received special recognition from the Food and Drug Administration in the US, highlighting its potential to treat the condition.
Supplements offer hope for advanced AMD, says researcher
Latest news, posted 25 November 2024
Dr Tiarnan Keenan, a clinician scientist at the National Eye Institute in the US, shares groundbreaking insights into the benefits of AREDS2 supplements for people with geographic atrophy (GA), an advanced stage of dry age-related macular degeneration (AMD).
Your top tips for coping with sight loss at Christmas
Latest news, posted 2 December 2024
From writing Christmas cards to cooking Christmas dinner, the festive season can present lots of challenges if you are living with sight loss. We share your simple solutions, to overcome all the tricker tasks at this busy time of year.