Simon staring at camera, while holding a magazine. A radio and cup of tea sit on the table

"I can now look forward to the future with a degree of hope and confidence"

Posted: Wednesday 4 September 2024

In the aftermath of his macular diagnosis, Simon was left feeling fearful and full of anxiety. But a year after receiving the devastating news that he had central retinal vein occlusion (CRVO), the 63-year-old tells us how he has managed to come to terms with his condition.

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nurse in clinic

First national guidance on diabetic eye disease published

Posted: Wednesday 4 September 2024

The National Institute for Health and Care Excellence (NICE) has published the first national guidelines for diagnosing and monitoring diabetic retinopathy and diabetic macular oedema in patients under the care of hospital eye services.

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Mixed group of people range of ages and races, smiling and laughing

New lived experience panel aims to improve support services

Posted: Wednesday 4 September 2024

The Macular Society is launching a new Lived Experience Advisory Panel (LEAP) to improve our services for people living with macular disease, and those who support them.

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Woman using enlarged reading material on tablet

Using smart devices for sight loss support

Posted: Monday 2 September 2024

Technology can be both exciting and intimidating. But, whether you’re a complete novice or looking to fine-tune your skills, you’re not alone.

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Janet Burton in mid air as she falls from the sky in a tandem skydive. Her instructor is strapped on top.

“The most thrilling thing I have ever done”

Posted: Wednesday 28 August 2024

Turning 71 became an unforgettable milestone for retired teacher Janet as she plummeted from 12,000 feet, all to raise awareness and funds for macular disease.

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One young white man and one elderly white man sat at a table looking at paperwork together, smiling

AMD added to list of conditions eligible for financial support

Posted: Thursday 1 August 2024

Age-related macular degeneration (AMD) has been added to the list of conditions eligible for additional financial support by the Department for Work and Pensions (DWP). This means benefits such as Personal Independence Payment (PIP) and Attendance Allowance may be easier for people with AMD to access.

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Picture of two Okko Health reps, one white female and one brown male, standing by poster presentation at ARVO

Home-monitoring app boosts patients' understanding of macular disease

Posted: Monday 29 July 2024

A recent study by OKKO Health has revealed significant improvements in health literacy among users of its home-monitoring app.

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Angela Young, a white female in her early 60s in eye clinic shaking hands with consultant ophthalmologist. Both smiling and looking to camera

Ex BBC journalist with AMD launches podcast

Posted: Monday 29 July 2024

A new podcast has been launched by Macular Society member and former BBC journalist Angela Young, who was diagnosed with macular disease at 56.

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"Without the Macular Society, I don’t know what we would’ve done"

Posted: Wednesday 24 July 2024

When Sue’s husband Peter was diagnosed with dry age-related macular degeneration (AMD), it wasn’t just his life that changed – it was hers too.

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Medication spilling out of container

AREDS2 supplements slow sight loss in late-stage dry AMD

Posted: Friday 19 July 2024

New research has found that taking a daily vitamin and mineral supplement can slow the progression of geographic atrophy (GA), an advanced form of dry age-related macular degeneration (AMD).

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Friends Lynne, left, and Karen smile to the camera while holding cups of tea.

“We can support each other and that has been quite marvellous”

Posted: Wednesday 17 July 2024

Two women who joined a global online support group for people with an extremely rare form of macular disease have formed a friendship after discovering they lived just a few miles apart.

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Fitness leader Rosey with her arm aloft wearing a Macular Society fundraising t-shirt. Macular Week posters are in the background

"I want to help create awareness of macular disease first and foremost"

Posted: Thursday 4 July 2024

Rosey, a 67-year-old fitness instructor, turned her exercise classes into a tribute to those living with macular disease as she set the routines to vision-themed music and asked everyone to wear yellow for Macular Week.

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