Latest news
“I'm still really scared of losing what sight I have left”
Posted: Friday 28 February 2025
Kate’s first experience of her rare macular condition happened 16 years ago, when she suffered a bleed in her right eye. It left her with peripheral vision only, though a timely injection halted any further sight loss.
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“The Christmas appeal inspired me to carry on fundraising”
Posted: Wednesday 26 February 2025
After playing a key role in the Macular Society’s Christmas appeal in 2024, ten-year-old Archie is stepping up his fundraising efforts as he plans a new challenge to raise vital funds for research.
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“Sharing and processing emotions can be a powerful tool for healing”
Posted: Monday 3 February 2025
Receiving a macular disease can leave you feeling frightened and uncertain about the future as you navigate something you didn’t expect.
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“I wanted to know what I could do to try and help myself”
Posted: Monday 3 February 2025
Claire found herself “alone and lost” as she tried to come to terms with her Stargardt diagnosis, not knowing anybody else with the rare form of sight loss.
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Finding joy after a diagnosis
Posted: Friday 31 January 2025
Losing their sight changed Dawn and Chris’ lives, but it didn’t stop them from finding enjoyment in the every day. In the latest My Macular and Me podcast, they share how new hobbies, support from others, and a positive mindset helped them find joy after their diagnoses.
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"Without speaking a word, my cane tells my story”
Posted: Friday 31 January 2025
For Rita, a simple white stick helped her overcome her embarrassment of losing her sight and helped her communicate her sight loss to others.
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Syfovre FAQs and next steps for dry AMD and geographic atrophy treatment
Posted: Thursday 30 January 2025
The UK’s Medicines and Healthcare products Regulatory Agency (MHRA) decision to reject the first potential treatment for geographic atrophy (GA), or late-stage age-related macular degeneration (AMD) is undoubtedly a disappointing one for those living with the condition. But, what does the decision mean? We answer your questions.
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First treatment for late-stage dry AMD rejected by UK drug regulator
Posted: Wednesday 22 January 2025
The first potential treatment for geographic atrophy (GA) or late stage dry aged-related macular degeneration has been rejected by the Medicines and Healthcare products Regulatory Agency (MHRA).
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How artificial intelligence is transforming eye care
Posted: Thursday 9 January 2025
Artificial intelligence (AI) is already part of our daily lives, but how is it changing healthcare? In a recent webinar hosted by Macular Society partner OcuPlan Dr James Neffendorf, an eye specialist at King’s College Hospital and ophthalmic surgeon Dan Calladine, explored how AI is transforming the way eye care is delivered and how it is improving outcomes for patients.
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"Volunteering makes me feel worthwhile, I just love helping other people"
Posted: Wednesday 8 January 2025
In 2025, Jenny will have spent 16 years helping out at her local support group for people with macular disease. While she doesn’t have sight loss herself, she joined to follow in the footsteps of her late husband Alan who was a group volunteer.
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Headset allows visually impaired football fan to watch games
Posted: Wednesday 8 January 2025
Crystal Palace Football Club has become the first to offer visually impaired fans access to a headset that allows them to watch live games more easily and stay involved with their team.
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“Counselling helped me express all the guilt”
Posted: Tuesday 7 January 2025
For two decades Jane has been dedicated to supporting her husband Ed since his diagnosis with macular disease. While she has always been firmly by his side, Jane admitted she has often felt a great sense of guilt – a feeling which resonates with many friends, family members or carers of people living with sight loss.
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