Latest news
Friends take on epic mountain challenge to beat macular disease
Posted: Tuesday 1 April 2025
From Yorkshire to Tanzania, two friends who spend their working lives treating people with macular disease are taking on a series of epic mountain climbs in 2025, raising funds to find a cure.
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How could the proposed changes to benefits affect you?
Posted: Friday 28 March 2025
The Government has launched a public consultation on major changes to health and disability benefits, as well as employment support.
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How to make the most out of your optician appointments
Posted: Wednesday 26 March 2025
From what to ask your opticians, to a guide on what to take with you to an appointment, the latest episode of the My Macular and Me podcast looks at how you can make the most out of your optician appointments.
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“I used to cry in the shower – there was so much anger”
Posted: Thursday 13 March 2025
Counselling has been a “lifechanging” experience for Trevor, who hit his lowest point when macular disease began to impact both of his eyes.
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Professor Andrew Lotery answers your questions
Posted: Wednesday 5 March 2025
Professor Andrew Lotery discusses the latest approved treatment for wet age-related macular degeneration (AMD), Lytenava and answers your frequently asked questions on treatments and research.
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Gene therapy trial improves sight in blind toddlers
Posted: Tuesday 4 March 2025
Four toddlers born with a severe form of childhood blindness have experienced “life-changing improvements” to their sight after participating in an experimental gene therapy trial.
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“I'm still really scared of losing what sight I have left”
Posted: Friday 28 February 2025
Kate’s first experience of her rare macular condition happened 16 years ago, when she suffered a bleed in her right eye. It left her with peripheral vision only, though a timely injection halted any further sight loss.
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“The Christmas appeal inspired me to carry on fundraising”
Posted: Wednesday 26 February 2025
After playing a key role in the Macular Society’s Christmas appeal in 2024, ten-year-old Archie is stepping up his fundraising efforts as he plans a new challenge to raise vital funds for research.
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“Sharing and processing emotions can be a powerful tool for healing”
Posted: Monday 3 February 2025
Receiving a macular disease can leave you feeling frightened and uncertain about the future as you navigate something you didn’t expect.
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“I wanted to know what I could do to try and help myself”
Posted: Monday 3 February 2025
Claire found herself “alone and lost” as she tried to come to terms with her Stargardt diagnosis, not knowing anybody else with the rare form of sight loss.
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Finding joy after a diagnosis
Posted: Friday 31 January 2025
Losing their sight changed Dawn and Chris’ lives, but it didn’t stop them from finding enjoyment in the every day. In the latest My Macular and Me podcast, they share how new hobbies, support from others, and a positive mindset helped them find joy after their diagnoses.
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"Without speaking a word, my cane tells my story”
Posted: Friday 31 January 2025
For Rita, a simple white stick helped her overcome her embarrassment of losing her sight and helped her communicate her sight loss to others.
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