Latest news
“I felt like the world had stopped and I was all alone and very scared.”
Posted: Monday 16 September 2019
At the age of 13 Faith started noticing that she was struggling to see the board at the front of her classroom.She said it felt as though just overnight things that were once clear and focussed were fuzzy and blurred.She was a backstop in the school roun…
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Eye health research gets a major funding boost for use of data
Posted: Wednesday 11 September 2019
The research collaboration Action Against Age-related Macular Degeneration, set up by the Macular Society and other charities, is now part of a brand new government-funded push to find new cures for eye diseases.AAAMD is a partner on a project that aims …
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One in four of the research projects we fund is made possible because someone remembered us in their Will.
Posted: Wednesday 11 September 2019
This week is Remember a Charity Week, when people across the UK are encouraged to leave a gift in their Will to their favourite charity, after taking care of family and friends.Our legacies manager Julie Edwards says: “It’s a great opportunity to think a…
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“It’s possible a cure won’t be found in time to help someone like me. But, something is being done.”
Posted: Monday 9 September 2019
Bill knew that his life would change following his diagnosis of macular disease, but he did not want to simply give up.He said: “When I was diagnosed in 2015, I’d never heard of macular disease, didn’t have a clue what it was; it was a real hammer blow.“…
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Gene therapy for rare eye disease set to be offered on NHS
Posted: Wednesday 4 September 2019
A gene therapy for a rare inherited eye disorder which can improve vision could soon be available on the NHS.Today the National Institute for Health and Care Excellence (NICE) has recommended Luxturna (voretigene neparvovec) for use in the NHS in England…
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Long-term exposure to air pollution could heighten AMD risk
Posted: Thursday 22 August 2019
Taiwanese researchers have highlighted an association between long-term exposure to air pollution from vehicle exhaust and an individual’s risk of developing age-related macular degeneration (AMD).
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Do you know the difference between wet and dry AMD?
Posted: Monday 19 August 2019
People diagnosed with age-related macular degeneration (AMD) will be told if their condition is ‘wet’ or ‘dry’.This distinction affects whether the condition can be treated or not, its progression, and how you need to monitor it.
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"The thought of losing my sight is such a daunting prospect”
Posted: Monday 12 August 2019
Julie, 42, was diagnosed with macular disease in her early 20s and assumed it would be a long time before her eye sight started to deteriorate.“I had been so blasé about being diagnosed with macular disease, due to not having any symptoms for such a long…
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Professional conference aims to reduce fear and isolation in patients
Posted: Monday 5 August 2019
The Macular Society’s fourth annual professional conference, Experts in Macular Disease, is set to take place in October.The event aims to encourage those in the sector to work together in order to reduce feelings of fear and isolation in patients by imp…
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"I really can’t emphasise enough just how much fun it is to be out on the pitch again."
Posted: Wednesday 31 July 2019
“I really didn’t expect to be returning to play football at 77 years old,” but that’s exactly what David Golding, a Macular Society Support Group leader, did earlier this year – but with a slightly unusual twist.David and two members of the Bude and Hols…
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Government considers new sight test for drivers over 70
Posted: Wednesday 24 July 2019
A new report highlights the Government’s commitment to consider mandatory eyesight tests for older drivers.
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"My life is none the worse for having Stargardt disease"
Posted: Monday 22 July 2019
Daniel was diagnosed with Stargardt disease at the age of 10.
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