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"I didn't know if my hallucinations were a manifestation of my grief"
Latest news, posted 16 November 2023
Seeing frightening faces in her own home was the reality for Penny, who was trying to come to terms with her sight loss in the aftermath of losing her husband.
Stargardt pill continues to slow sight loss
Latest news, posted 28 November 2023
A drug being trialled as a potential treatment for Stargardt disease has been shown to slow down the rate of sight loss.
World Geographic Atrophy Day raises awareness of common condition
Latest news, posted 5 December 2023
The first-ever World Geographic Atrophy Day raises awareness of the condition and the five million people living with it across the globe.
A guide to accessible streaming
Latest news, posted 13 December 2023
Watching television is one of the many tasks which can become more difficult if your sight is affected by macular disease. But, there are solutions available.
‘We’re hoping our research can lead to potential treatments’
Latest news, posted 20 December 2023
A groundbreaking research project is underway, focusing on screening a library of already licensed drugs to potentially treat Stargardt disease.
'I went to help make tea but I stayed for the support'
Latest news, posted 21 December 2023
For more than a decade Valda volunteered with her local support group, despite her initial doubts of being around others with sight loss.
Politicians urged to prioritise national eye care plan
Latest news, posted 17 December 2023
The spotlight was turned on eye health in the Houses of Parliament this month as MPs faced urgent calls to improve NHS eye care services and prevent avoidable sight loss.
Gwasanaeth cefnogi dros y ffôn newydd ar gyfer pobl sy'n byw yng Nghymru
Latest news, posted 18 January 2023
Mae grŵp newydd yn cynnig cefnogaeth dros y ffôn wedi'i sefydlu i helpu i leihau unigrwydd ac arwahanrwydd ymhlith pobl sy'n byw gyda cholled golwg ledled Cymru.
"It's only now that I have seen the impact macular disease has on people"
Latest news, posted 20 January 2023
A retired ophthalmic nurse said it wasn’t until she began to volunteer with her local support group that she realised the true impact of macular disease and the impact it has on many people’s lives.
Five ways you can make a difference as a volunteer in 2023
Latest news, posted 3 January 2023
From managing support groups to providing a listening ear on the telephone, there are many ways people are making a difference to the lives of people living with sight loss.