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Treatment delays – “It’s vitally important to speak out”

Latest news, posted 5 April 2023

Stories of delays to vital treatment for age-related macular degeneration (AMD) have been hitting the headlines over the last few weeks. While the news is concerning for many people affected, Pam, who was diagnosed with wet AMD in 2021, has shared why she has spoken out about her own experiences to the national press and why she would encourage others to do the same.

Warhammer fundraiser to raise awareness of macular disease

Latest news, posted 14 April 2023

A twelve-year-old Warhammer fanatic is organising a fundraising tournament in memory of his beloved late grandad, to raise awareness of macular disease and support others with the condition, after seeing the impact it had on his life.    

Biosimilars - the cheaper drugs for macular degeneration

Latest news, posted 3 May 2023

As patents for existing drugs to treat wet age-related macular degeneration (AMD) and diabetic macular oedema (DMO) expire we hear from professor Richard Gale, on what this means for patients and ophthalmology services.

"You have to remind yourself what you can achieve"

Latest news, posted 3 May 2023

Judy, 79 has taken on the remarkable challenge of climbing the O2 in London in her determination to show others what they can achieve.

Stargardt pill could slow progression of disease

Latest news, posted 10 May 2023

A new drug to treat Stargardt disease has helped to slow down the progression of the condition in some patients, according to the latest results of a phase two clinical trial.

"It doesn’t matter how much I can see, it’s just about being able to compete"

Latest news, posted 16 May 2023

From pulling tractors weighing three tonnes, to throwing heavy barrels, 31-year-old Matt does not let his sight loss stand in his way as he continues to push the limits of human endurance.

Macular Society recognised on Best Places to Work list 2023

Latest news, posted 12 May 2023

The Macular Society, has proven its commitment to creating an exceptional workplace environment after its recognition in the highly-regarded Sunday Times Best Places to Work list for 2023.

“The only skill you need is empathy”

Latest news, posted 1 June 2023

A former ophthalmic nurse has spoken of her rewarding new role as a volunteer group leader for the Macular Society and the difference she’s making to people with macular degeneration.

Improving eye care services: a shared vision

Latest news, posted 7 June 2023

The national clinical director for eye care, Louisa Wickham, says she is determined to address the challenges faced by the sector and improve services for patients.

Support MPs call to scrap ‘unfair’ tax on audiobooks

Latest news, posted 7 June 2023

Sir Mike Penning has secured a debate in Parliament on taxes on audiobooks, which he says is unfair to those who have lost their sight.