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Lived Experience Advisory Panel

Volunteer roles

Why we need you

The Macular Society is the UK’s leading charity determined to beat the fear and isolation of macular disease with world-class research, and the best advice and support. We need to reach the thousands of people living with macular disease and sight loss, and we need your help to do this. We provide life-changing support, offer advice, information and guidance to people with macular disease and their family and friends.

Benefits of working with us

Work with us

Would you like to make a real impact with your work? Join us and help deliver our ultimate ambition – to Beat Macular Disease! 

London Landmarks Half Marathon 2025

Take part in an event

Join #TeamMacular for London Landmarks 2025

London’s only closed-road half marathon through the City of London and Westminster. 

The London Landmarks Half Marathon route passes London’s most spectacular sites and immerses participants in London’s quirky and hidden history. The route is lined with amazing singers, dancers, bands, and musicians, as well as an abundance of family activities and entertainment on offer. This is an event not to be missed!

Sparkling gift bags

Set of three shiny Christmas gift bags

Give your gifts in style! This is a lovely set of three sparkling gift bags - one each in metallic red, silver and gold.

RideLondon - Essex 100 2025 - cancelled

Take part in an event

2025 RideLondon - Essex 100 - cancelled

Sadly, London Marathon Events have taken the decision to cancel the 2025 RideLondon-Essex.

RideLondon - Essex 60 2025 - cancelled

Take part in an event

2025 RideLondon - Essex 60 - cancelled

Sadly, London Marathon Events have taken the decision to cancel the 2025 RideLondon-Essex.

What our teams say

Work with us

“It’s amazing to be part of an organisation where everyone works so hard to achieve the same goal. I feel part of something important and that the work I do is valued. I feel that what we do really helps people, and that my own lived experience of sight loss helps me make a difference and inspire others who are diagnosed with macular disease, to get the advice and support they need to move forward after diagnosis.”

Current job vacancies

Work with us

Explore the opportunities below to become part of our team. But first, why not learn more about the rewarding experience of working with us.

Share your experience of living with macular disease

Get involved in research

There are regular opportunities for people living with macular disease to participate in research studies. The purpose of these studies is to understand more about the impact macular disease has on individuals, and on their family and friends. It can be anything from completing short surveys to taking part in focus groups or interviews. We also carry out our own surveys.

Macular Disease Conference 2024 dial in details

Macular Disease Conference 2024

The Macular Disease Conference: Hope for the Future will be held online on Saturday 14 September 2024.