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“I couldn’t understand why other people weren’t seeing what I was seeing”
Latest news, posted 16 November 2025
Being the only person to see kittens climbing out of her TV, trees growing inside her house and people sat in her bedroom was an alarming experience for Janet after she was diagnosed with age-related macular degeneration.
Running in remembrance: raising funds for macular disease
Latest news, posted 24 November 2025
Every year, Susan runs the Great North Run in memory of her father, Neale, who was diagnosed with wet age-related macular degeneration (AMD). Through her fundraising for the Macular Society, she has raised thousands to support vital research, awareness, and services for people affected by macular disease, keeping her father’s memory alive while helping others.
“We’re all hoping research can fix this, aren’t we?”
Latest news, posted 18 November 2025
Gill knew what macular degeneration was as it was something her mum had and she had been taking her to regular eye appointments for many years. But, when the optician said she had it in her own eyes, she didn’t take much notice, because it wasn’t affecting her vision.
New stem cell trial offers potential cure for AMD
Latest news, posted 18 December 2015
Surgeons in London have carried out a pioneering human embryonic stem cell operation in an ongoing trial to find a cure for age-related macular degeneration.This first operation is a major milestone in the London Project to Cure Blindness, which was esta…
Health Talk seeks genomic research participants
Latest news, posted 1 February 2016
Health Talk, which provides free information about health issues by sharing people's real-life experiences, is looking to talk to people who have been invited to take part in the Genome 100,000 Project.
Statins could help prevent AMD
Latest news, posted 5 February 2016
New research has revealed that statins may prevent dry age-related macular degeneration (AMD).
Experiences of Personal Independence Payment on people with sensory impairments
Latest news, posted 9 February 2016
Researchers at NatCen Social Research are currently working on a project about the experiences of people with vision impairment and people with combined hearing and sight loss who have been claiming Disability Living Allowance (DLA) and who will apply fo…
Moorfields will highlight rare eye diseases as part of a global campaign
Latest news, posted 25 February 2016
Moorfields Eye Hospital is supporting a global awareness day, which highlights rare diseases and the impact they have on patients’ lives.
New study confirms prevalence of visual hallucinations in sight loss
Latest news, posted 29 February 2016
Optometrists and ophthalmologists are being urged to broaden their understanding of Charles Bonnet Syndrome (CBS), after a major study has backed up how commonly patients with severe vision loss experience it.The study by the Canadian National Institute …
Royal College of Ophthalmologists warns of eye risk from ‘overstretched NHS’
Latest news, posted 17 March 2016
Eye specialists have warned that hundreds of patients suffer irreversible sight loss every year in England because services are overstretched and under-resourced.